First of all,our internet is down at home and I haven't had a chance to call on it yet. I'm using the computer at the hospital right now.
Second, Abby had her surgery Monday afternoon. They had originally scheduled her for 8:30 am, but we knew she could get bumped until either later in the day or a different day altogether if theyhd emergencies that took precedence over her. We all arrived that morning, but they rescheduled her until 1:00. However, they didn't come get her until around 3:30. Joshua did fairly well for being cooped up most of the day. She was back in her room around 5:45 and pretty cranky coming out of the anesthesia. She has 3 small incisions in her abdomen, one of which is in her belly button and another that has the tube in it.
It is now Tuesday around 1 pm and she has been doing well with continuous feeds. They've done one bolus feed (a larger amount over a shorter time) and will do another one at around 3:30. If she tolerates this well without any throwing up then I can take her home. I have to leave in about an hour to pick J up from Kindergarten. Then a friend is picking him up around 4:30. At that point I'll head back down here to get the girl. In the meantime the health care company should be calling to set up a time for them to drop off and demonstrate the pump and supplies.
Next week she should start seeing a speech therapist on at least a weekly basis, maybe more often, to work on her feeding skills. She had various tests down here and we still can't explain why she doesn't want to eat enough on her own. Hopefully the therapist can help get her back on the right track.
In regards to Joshua, yesterday was much better at Kindergarten, but he still says it's boring. But healso says he had a great day. Depends on which mood he's in at the particular time you talk to him about it. Hopefully we can get life back to a little bit more normal for him soon.
17 years ago
