It's been a tense week of watching and logging Abby's intake and outtake. Yesterday morning Mark and I headed down to PCMC in Salt Lake with Abby a little before 6:30 to admit her. She had only taken in around 7 1/2 oz during the previous 24 hrs and her urine output was about half of the minimum they want to see over the last 12 hours.
Of course, it was also Joshua's first day of Kindergarten, so I had to take him over to a neighbor's house so she could take him to school. Her camera was busted and when we picked him up I got a few shots. I'm not sure how they'll turn out since my camera has been acting up and is now dead too. I think someone probably dropped it. Joshua had a so-so day. Hopefully he'll have better days in the weeks to come.
So, Abby is on an i.v. and has a nasal feeding (ng) tube in. She's had some tests and has another upper GI sometime today to try and determine how bad her reflux is. No one knows yet why she won't eat. It's also a 3 day weekend, so all of the GI doctors are gone until Tuesday. I'm not comfortable with her coming home with the ng tube. She is notorious for pulling them out and she's just gotten too big and strong for me to put it back in, especially on a daily basis. Also, if she were to pull it partially out during a feeding without my knowledge, then she could aspirate into her lungs quite easily. The plan will be for a g tube surgically inserted into her stomach with a port on her abdomen. However, it could take at least a week to get tht arranged. So in the meantime, here we are. She would then most likely have the tube in for around 2 years until she can completely take in everything she needs by mouth.
17 years ago
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