It's been quite a while

My last post was Sept of 08. It's now April of 09. I could say, "Oh, how time flies," but the truth is that I haven't been very motivated to do much of anything. Since all of this happened with our little one I've struggled with getting things done beyond the bare minimum needed to keep things going. Some days are better than others, but then something happens that just overwhelms me again and I put things off...and off.

Abby has been doing well for all of the difficulties that she has faced. She is crawling all over now and likes to get up on her knees. I'm sure she'll be getting herself into a standing position soon, and then walking is right behind that. She is also off of the oxygen during the day. She may be able to get off it at night by the end of the month, but we'll have to wait and see. She has a test on the 21st to see if her pulmonary hypertension has cleared up or not. That's a big part of the equation. I'm very thankful that she has only had a small cold that she picked up from her brother during the Christmas break. Of course it led to a perforated eardrum, and another one in Jan. She hasn't been able to clear the fluid out yet so she is having tubes put in on Wed. Hope all goes well. Joshua is sick now (Spring break this time) with sneezing, congestion and coughing. This is what happened last May right after Abby came home from the U of U. Then she was right back in Primary's Children Medical Center for another 2 weeks. I don't want to repeat that. She's much stronger now, but a cold could cause problems for her surgery this week.

Joshua is doing well in school after a rough start. He was having problems being the class clown, but they also had 30 or 31 kids in his kindergarten class. Shortly after the new year they broke the classes up so now he only has 20 kids in his class. It really seems to have helped. Although, he is still my stubborn little guy. He's really cathcing on to this reading thing and loves math. He started soccer, which he's not too sure about, but it's good for him. Now that the weather is starting to get better we can hopefully start getting out to the park with Abigail. It's still RSV season so we're not suppose to be around a lot of people and other kids, but it helps to get out.

Abby is still using her g-tube for the majority of her feedings. We've had some progress in the eating department, but not much. She still won't drink much at all. I can get about an ounce into her by using a medicine dropper over and over again. I don't think we've been able to do this more than once a day. It's frustrating, but I'm sure we'll get there someday. I knew going into this that we were looking at a couple of years. She gets her feedings during the day most of the time, but every now and then we have to use the pump when she goes to bed. It just went off and when I went in to disconnect it, the tubing had already become separated. This happens sometimes and then there are 2 main problems. First, you have no idea when it happened. So you don't know how much of the feeding she actually got. Then it's also all over the place. This time it had just run down the side of the matress and onto a big puddle on the floor. Sometimes it leaks all over the crib and she's soaked too. Then you have to get her up in the middle of the night, wash her off, change her and change the sheets. It's such a mess. Oh well, at least it doesn't happen often.

Well, I'm going to bed now. It's time to turn into a pumpkin. I'll try to keep going with the blogging. with this. We'll see.